International Rare Disease Research Consortium Shenzhen Conference

Date: 07-Nov-14 to 09-Nov-14
Location: Futian Sheraton Hotel / Shenzhen / China
Category: Healthcare & Pharmaceuticals Conferences & Trade Fairs

The second conference organized by IRDiRC in collaboration with the BGI is gathering stakeholders active in the field of rare disease from across the globe. It will be held on 7-9 November 2014, China

This conference aims to raise awareness of the topic of rare diseases around the world and to foster international collaborations involving Chinese researchers and clinicians. It will provide unmissable opportunity to network with different rare disease communities from Europe, North and South America, Africa, and Asia-Pacific. We hope this will encourage and motivate investment of research and social resources in the field of rare diseases, to ultimately improve the diagnosis, treatment, and care of patients and their families.

It will be held with two days of conference - where four exciting parallel tracks will take place in the topics of Diagnostics, Interdisciplinary-Technologies, Therapies, and Educational - and one day of valuable training course

Programme of IRDiRC Conference
Diagnostics
Sequencing and Other Omics Technologies
Interpretation of sequence data
Impact on Diagnosing Rare Diseases on Patients and on the Healthcare system
Sharing Information on Rare Diseases

Interdisciplinary-Technologies
Registries and Biobanks
National Plans and Policies on Rare Diseases
Patient Involvement and Ethics in Rare Disease
Research
Health Technology Assessment and Access to
Orphan Drugs

Therapies
Gene / Cell Therapy
A View of Therapeutic Development from the Industry
Regulatory Challenges for Drug Development in Rare Diseases
Clinical Trials: Challenges and Possibilities

Educational
Principle of Genetic and Genomic Medicine

Training Course Program
International Perspective
Medical and Laboratory Applications of
Genomics for Rare Diseases
Database and New Technologies
Genetic and genomic clinic, genetic counseling,

Highlights of the Conference
The educational track on 7-8 November
A training course on genetics on 9 November
A matchmaking workshop to facilitate collaboration between clinicians and scientists

Registration opens from 18 June onwards!

Time: 09:00 - 17:30

Price:
Early registration: until 15 August: CAD 450
Regular registration: 16 August - 5 November: CAD 600
On-site registration: 6 - 9 November: CAD 675
Training course on 9 Novevmber: CAD 150
Conference banquet on 8 November: CAD 75

Visitors

Open to all

Exhibitors

Brett Monia (Isis Pharmaceuticals, USA), Christine Eng( Baylor College of Medicine, USA), Han Brunner ( Nijmegen, The Netherlands), Helen Firth (Cambridge University, UK), Kym Boycott (CHEO, Canada), Michael Brudno (University of Toronto, Canada), Nigel Laing (UWA, Australia), Paul Lasko (McGill University, Canada), Petra Kauffman (NCATS, USA), Yann Le Cam (EURORDIS, France)

Go to event website